Jeremy and I on Easter Sunday 2010

Monday, November 22, 2010

Having MS Sucks ;}

I don't what is with this time of year. I can't stay motivated. I would like to say that I have control of my MS but it's all an illusion. MS takes control whenever it freaking feels like it, well, in case your wondering I would love to take control back now. Feeling like you can barely move or get off the couch bites. When my husband is speaking to me and I am too tired to even talk, it's ridiculous. Then I had joy of falling in love with my husband all over again last night as I watched him exsert every bit of energy he had to play like a crazy guy with our 2 year old little lady. It was amazing and I sat on the couch and watched. I am lucky to have him be my husband.

I am happy to report that Betaseron is doing what is supposed to, currently no new active lesions in my brain, so that is good news. Bad news, the symptoms never completly go away. I really hate the, what I have learned people call it, as MS hug. My body feels so very uncomfortable, and eyes are blurry every so often for few minutes at a time.

I am looking forward to the holidays this year. Mostly because I miss my kids like crazy and I cannot wait to be with them. I am using all the energy I have to keep going right now. We are going to my in-laws for Turkey Day, which is good. My sister-in-law was diagnosed with Lupus recently. I find it a little crazy that 2 of the Farley boys have wives with auto immune diseases. I love my sis-in-law. She is a strong person and I know talking and hanging out with her will be a great pick me up while I am in VA.

Hopefully the fatigue will pass soon and I can rejoin my life that is already in session.

1 comment:

  1. Sending some extra spoons your way...
    http://keeponsmyelin.blogspot.com/2009/06/spoon-theory.html

    Hope you have a wonderful Thanksgiving!

    ReplyDelete